Still going Strong...

So everything is pretty much the same here. Ezra's labs keep going up and down. It really is a never ending roller coaster. They tell us that his labs will go up and down so to not get too hopeful when they are going the way we want. To be honest that is the hardest thing. Beau and I catch ourselves always getting hopeful and then socked in the gut again. It is totally our fault but anyways. Beau and I still believe that Ezra will be okay. It is going to be a long haul but he'll be okay. Dr. Whittington is coming tomorrow and both Beau and I are extremely anxious to hear what he has to say. Hmm...Anxious and yet afraid at the same time.
Everyday I pray for faith. I pray that my faith will stay strong even though the unknown is so scary right now. I know that I'm jumping all around in this post but I'm just trying to get my thoughts down for the day. Ezra has been given a bit of morphine the past two nights because of how uncomfortable he is. They have his high flow on 6liters. Uhh..High Flow has something to do with the oxygen he is on. Sorry that is all I know. Anyways, 6 Liters is the highest it will go, and so all day and night he is getting all this air in his little belly. Now imagine how it feels when you have gas pains. Imagine that for a tinsy little guy who has to deal with it all day. Beau and I were a bit frustrated yesterday because it is so hard to see your child uncomfortable or in pain and not be able to console them or do anything but try to shove a binky in his mouth. Whew okay I'm done rambling but anyways we will keep updating.