Sunday, July 20, 2008

Still going Strong...





So everything is pretty much the same here. Ezra's labs keep going up and down. It really is a never ending roller coaster. They tell us that his labs will go up and down so to not get too hopeful when they are going the way we want. To be honest that is the hardest thing. Beau and I catch ourselves always getting hopeful and then socked in the gut again. It is totally our fault but anyways. Beau and I still believe that Ezra will be okay. It is going to be a long haul but he'll be okay. Dr. Whittington is coming tomorrow and both Beau and I are extremely anxious to hear what he has to say. Hmm...Anxious and yet afraid at the same time.
Everyday I pray for faith. I pray that my faith will stay strong even though the unknown is so scary right now. I know that I'm jumping all around in this post but I'm just trying to get my thoughts down for the day. Ezra has been given a bit of morphine the past two nights because of how uncomfortable he is. They have his high flow on 6liters. Uhh..High Flow has something to do with the oxygen he is on. Sorry that is all I know. Anyways, 6 Liters is the highest it will go, and so all day and night he is getting all this air in his little belly. Now imagine how it feels when you have gas pains. Imagine that for a tinsy little guy who has to deal with it all day. Beau and I were a bit frustrated yesterday because it is so hard to see your child uncomfortable or in pain and not be able to console them or do anything but try to shove a binky in his mouth. Whew okay I'm done rambling but anyways we will keep updating.

8 comments:

Jen said...

I am anxious to hear how things went today with the Chicago dr. We are praying that it went better than expected. Love.

Alison said...

We're so anxious to hear what Dr. Whittington has to say. Good luck today. We're praying for you guys.

Jenn Sego said...

I've been praying non stop for little Ezra and your family. I've also put him on our prayer list at our church. I believe in the power of prayer. I check the blog every day to see photos of his sweet face and for updates. I am praying that all goes well with Dr. Whittington. You are all in our thoughts and prayers. Always, The Sego Family

Jason, Kim, & Kallie said...

I hope things are going well with Dr. Whittington. Were praying for you guys, what a little angel Ezra is... a tough little angel.

Emily said...

Sarah, I have been thinking about you guys nonstop and am so glad you've been posting on your blog. Along with everyone else, I can't wait to hear the latest. Hang in there.

karikickit said...

I am so damn proud of the both of you and I just know that things will be alright. I am a bit anxious to hear what the doctor from Chicago has to say. Onward and Upward. Big HUGS-Kari

hayleyharts said...

Hang in there sweet sara...I love the pic with his daddy..those are so sweet..little ezra is such a fighter!

Veronica Reeve said...

We're rootin' for the little guy! He is adorable. Keep posting pictures and updates....we'll be praying for you!!